capriuni | Entries tagged with disability rights

I remade my "Simply Human" video, using Windows Movie Maker's animated titles, and "live" narration features.

Mostly because I'm vain, and I couldn't stand that every other line in my first version (or so it seemed to me) was out of key. And the static image was just too boring. Also, changed a couple lines in the lyrics, because I realized that I was using the verb "to hear" to mean "respect," and that is audist.

So, here:

Crossposts: http://capriuni.livejournal.com/644443.html

[ETA: I was so unhappy with the quality of this video (and my singing on it) that I deleted it from my account; the video that I put up in its stead is here: http://www.youtube.com/watch?v=Lay9MTzFq08 ]

I put the word "video" in quotes, because the only visual are a few introductory titles, and a single still image of the song's musical score (I figure that's no worse than all the videos out there that are nothing but still images of the album covers... at least, I designed it so the score would look nice on a single page).

I'm also posting this as a public service announcement to demonstrate that it's really relatively easy to make a closed-caption (or subtitle) track for your videos. I used the free online program at http://www.overstream.net/ If I can do it, there's little excuse for others....

The tutorials (watch both one and two before you start) are fairly straight forward (at least, if you're a sightie -- it's in flash video format), but they fail to remind you that if you want to attach your subtitles to your video on YouTube, you have to Export your file to your own computer, so you can upload it again, and posting your video there.

... But other than that, it's a really easy process. It took me a couple of hours to finish, but that was just 'cause it was my first time, and I had a cat who was climbing on me like a jungle gym, at the time, and fwapping the top of my head with her paw... And next time, I'll have the words I want to put in open in a word processor ahead of time, so I can just copy/paste, rather than typing out each line by scratch.

Anyway, here (I recommend turning the captions on just so you'll have some variation to look at):

( the Words &cetera )

Here's a link to my original post about it on MudCat (with a low-tech code for hearing a midi of the tune). http://mudcat.org/thread.cfm?threadid=114688

Crossposts: http://capriuni.livejournal.com/643461.html

Back on December 4, 2011,

haddayr posted this link to "The Invisible Backpack of Able-Bodied Privilege Checklist" over at the B-tch on Wheels blog:

http://exposingableism.wordpress.com/2009/10/12/the-invisible-backpack-of-able-bodied-privilege-checklist/

And I thought it was a good list... but what its author called "able-bodied privilege" was actually specific to bipedal privilege, and completely skipped over issues of fatigue, pain, and sensory disabilities (like blindness).

So I came up with my own list, here: http://capriuni.dreamwidth.org/608976.html

And now, I'm contemplating putting it up in video format on YouTube, so more people can see it (maybe a series of short videos, so I don't have to make it --and folks don't have to watch it--all at once).

I want to start by talking about the idea of privilege, itself. The thing I've noticed is that some people think that when you point out they have privileges that you're accusing them of being a bad person, because of it, and they get defensive and shut down. So I want to reassure people that that's not what I mean -- after all, white people can't help being white, able-bodied people and cisgendered people can't help being white or cisgendered. So it's not the having privilege that's blame-worthy, it's how you use it that matters.

And I want to use some metaphor other than "invisible backpack (knapsack)," because that metaphor was coined by Peggy McIntosh, and I'm not her.

And then I thought of comparing socially ingrained privilege, which is not talked about much, with the privileges that come with fame, which are talked about a lot (And, thus, a more familiar idea, and less scary). I realize this has its own drawbacks, but... tell me what you think?

( 'Golden Ticket and Velvet Rope' Prospective introduction to the idea of social privilege (Instead of 'invisible backpack' metaphor) )

Crossposts: http://capriuni.livejournal.com/636747.html

This last Monday (December 4, 2011)

Crossposts: http://capriuni.livejournal.com/630094.html

(Manually cross-posted to my LJ mirror)

On Sunday, November 27th, I was having lunch with my long time friend and writing mentor, Irene O'Garden, who founded The Art Garden, and she asked me what writing, other than The Art Garden, that I've been doing. So I started talking about Plato's Nightmare / Aesop's Dream.

And another guest there, Scott Laughead, got really excited by the idea of what I was doing, and said that I should find a partner, and apply for a grant to support my work on this, because it's important (And that getting a partner would make it easier to get a grant, because it would show potential donors that this is more than just a pet peeve or private pipe dream or fantasy).

I agree that it's important; I truly believe that participating in storytelling (in whatever medium, and whether as teller or audience) is central to our humanity, and that the stories we tell have a profound impact on the realities we bring about. And yes, noticing that the Experience of Disability can be found in folklore (and literature) is one way to acknowledge that Disability is part of human experience. Period. And it's about time we got over the idea that the Disabled are always rare exceptions, and this whole, new "politically correct" thing that we have to change everything for, out of the blue, because some do-gooder got a bee in her bonnet...

And seriously? even the idea that someone might give me money to do something I've loved ever since I can remember loving stuff is a downright heady and intoxicating idea.

But --

Bwah?

Turning Plato's Nightmare / Aesop's Dream into something that would even make sense to use grant money would mean turning it into some form that engages the Capital P "Public," in some way (and that makes the idea very Scary [Capital S]). And right now, it's very much a private, editorial, thing: just my private opinions, based on my own experience (very real and valid, but also limited).

How do I change PNAD from a private noun into a public verb, so to speak?

I'm tickled by the idea, but I'm also stumped.

Any suggestions?

From today's "Rolling around in my head" blog entry: Quo Status:

(quote)

. . . What it took was noticing. Noticing that while I typed on the desk in front of the television, Joe was left with little to do but watch me type. Noticing that I was using 'our' space for 'my' space had me noticing the unfairness of that assumption. So, a few minutes later, we are both using the space, both doing what we want, both happy here together.

. . .

I think that's why many of us as people with disabilities sometimes feel 'hurt' rather than 'angry' or 'annoyed' or 'frustrated' at inaccessibility. I mean like didn't anyone NOTICE that this space is utilized by only one group of people, that the others are left to watch but not participate, look in but not come in, understand but not be understood. It takes NOTICING, noticing privilege and doing something about it. It takes NOTICING that what you expect as a given, isn't given to all. It takes NOTICING that the status quo for many is no status at all.

(unquote)

Crossposts: http://capriuni.livejournal.com/625513.html

I'm trying to find photos (and pre-photographic art) to illustrate This 'Disability Rights Protest Song' video I'm working on... trying to find pictures of the disabled [both physically and cognitively] in settings where they've been shut away from society.

Putting keywords like: "Nineteenth Century Almshouse Disabled History" in Google's image search has pulled up nothing but images of the outsides of buildings, looking all romantic and pretty, with emphasis on the gardens that were around them (and quite a few advertisements for "historic" almshouses that have been converted into luxury apartments for wealthy people... [Sad facepalm]).

Putting keywords like "Nursing Home Disabled residents" and "Residential School Disabled" into the search pulls up images posted by the nursing homes themselves -- online versions of glossy brochures, touting what wonderful, happy, places they are.

Then, there are sites like this: Disability History Panels that make all sorts of "shocking" claims about how horrible people were to the disabled in the past... And while I have no doubt as to the truth of the claims, I can't find a single citation for where these facts come from... so that those people who do doubt the truth would find it easy to dismiss the history as 'hype'.

Meanwhile, that particular site, though posted in connection with Alaska's Health and Social Services website, was plagiarized, word-for-word and image-for-image from an online interactive Flash-based history project done by the Minnesota Governor's Council on Developmental Disabilities.... And the Minnesota site doesn't give any sources, either ... And their eleven-question "Quiz Show" on history of disability is more editorial than fact (asking whether calling someone an "idiot" is acceptable, or not, and claiming for a fact that it is not -- period. While I may agree with the opinion -- that is still an opinion. And "educating" in this manner only plays into the arguments of those who say "Disability Rights" is nothing but "Political Correctness.").

Our elected officials. Are they all fourteen-year-olds?

Crossposts: http://capriuni.livejournal.com/623777.html

I'm collecting images from history of physically and mentally disabled, and their struggles against "The Normals" for a project I'm working on. And in my insomnia-driven quest Last Night/This Morning, I came across the following tidbit (from this website: The Sheredes Project: Spitalbrook Hospital):

(Quote)
The Living Dead

In the Middle Ages, if a person developed leprosy, they would be declared legally dead and lose all their possessions. They would have to leave their family, and go to live with other lepers in a place like the hospital at Spitalbrook. In Medieval times, this would have been outside the village of Hoddesdon.

Lepers were given special clothes, a begging bowl, and a bell or wooden clapper, so they could be clearly seen and to warn other people to keep their distance. They were given these in a ceremony that was modelled on the service for the burial of the dead and, in many places, the leper was actually required to stand in an open grave while the ritual, that marked them as outcasts from society, was performed above their head.
(Unquote)

Now, for the record: No, I don't believe the early makers of Grade B Zombie movies realized they were making entertainment based on historical instances of actual human rights violations. They probably thought the idea of "Living Dead" just sounded cool, and let their imaginations run wild.

But, you know. It's something for you to think about, when you're deciding what sort of entertainment to hoot, screech and laugh over, next week.

Crossposts: http://capriuni.livejournal.com/622941.html

On Sunday, for

naarmamo, I made a text-based art, with lots and lots of words. Encoded as a jpeg file, it cannot be read by screen readers, and there are far too many words for me to fit in the description space on flick'r. So I'm posting the words, here, and then I will link to it, there (I think that's possible, yes?):

( Monsters are on the rise )

(And that text repeats once, to fill out the rectangle of the image)

And I just now, noticed two typos -- and yes, I fixed them (I wrote this near midnight, in a state of exhaustion, the day after "Irene", so I think only two typos is pretty good, considering). The word choices were made with as much an eye to keeping it a solid block of text, and keeping the righthand edge nearly straight, as to actual clarity and meaning. It could definitely use some editing, if it wants to be a real essay or poem when it grows up.

And for those who can see it, here's the image / link to Flick'r:

Crossposts: http://capriuni.livejournal.com/613297.html

So -- it's art-making month over in Live-Journal land, and while I went in thinking I'd make a new something for my Chimer(i)gons store (nearly) every day, and really boost my inventory, it hasn't worked out that way.

But, since the start of the month, I now have four (4) new designs, and I thought I'd share them (it's been a while, hasn't it?). Image links are behind the cut, with brief descriptions of the products' mottoes (I've tried to write detailed descriptions on each item's product page, in the store):

( In order from most recent to least: 'Autism Spectrum', 'My Responsibilities', 'Cerebral Palsy statistics', and 'Wishing I could walk is BORING' )

---
Designs I want to do in the future:

"Cerebral Palsy is a Broad Umbrella" With a picture of a broad umbrella with a whole crowd of differently-postured people underneath (and maybe the word "normal" falling down as if it's rain around them). That was going to be today's daily art. But it turned out to be more complicated than a one-day project.
"Dear Pity Junkie: I'm not here to be your fix" I'm not sure what sort of graphic I could put with that that isn't ableist against those who require lots of drugs. Maybe just the words, and no graphic?
"Bitter Cripple! (I'm cool with GOD. It's YOU I'm pissed at!)"
"I don't 'suffer' from anything (but you, Honey, are getting on my last nerve!)"

-----

In other news, the Virginia State Assembly cut funding for home assistance for the disabled and elderly to 56 hours a week, and now, kids won't be able to have personal aides with them in school past kindergarten (even if they need someone trained in administering, oh, say emergency anti-seizure medication within 90 seconds to save their lives). So Audrey is now having to rethink her livelihood, and J's mother is seriously considering homeschooling him. However, the latter development is mostly because all his teachers and therapists are obsessed with "fixing" his weaknesses rather than developing his strengths. Right now, they're obsessed with getting him to cut paper with scissors, and won't teach him anything else until he masters that -- even though he is now able to finger paint quite well, and that skill could be expanded to writing and using a computer mouse, and heck -- making really nifty art (speaking of art-making month).

And this is why, my friends and readers, when you conduct a survey of "children's" developmental disabilities, their population seems to suddenly explode when you bother to look outside the classroom...

-- Sigh --

So yeah, the disabled are the first to get their rights to life curtailed and the last to get their civil rights protected.

Crossposts: http://capriuni.livejournal.com/611988.html

So. For months, now, I've had this C.P.-related design idea for a Zazzle Tee-shirt/mug/whatever that, today, sent me searching for images of infant brains showing C.P.. And that led to reading paragraphs around the images. And just now, I found the following (from a site aimed at medical people, based on the vocabulary):

(Quote) Approximately 30-50% of patients with cerebral palsy have mental retardation, depending on the type.[6, 7] However, because of oromotor, fine motor, and gross motor difficulties, communication in these patients may be impaired and expression of intellectual capacity may be limited. However, if cerebral palsy is approached in a multidisciplinary manner, with physical, occupational, and nutritional therapy to maximize rehabilitative efforts, patients can be more fully integrated academically and socially* (Unquote)

[Emphasis my own.]

This is what I have been saying for 20-something years, now. But if that second sentence is true, then the first sentence is false. Let me try to fix it:

Approximately 30-50% of people with cerebral palsy may not have been given full educational opportunities, and are thus classified as mentally retarded.

There! That's better!

From Medicine-Science: Cerebral Palsy (Posted by admin, August 6, 2011)

Crossposts: http://capriuni.livejournal.com/611679.html

There's going to be a repeat of "Inspector Lewis," where the plot revolves around a family whose teenage daughter becomes paralyzed in a car crash, and the action is driven by the different family members' reaction to same -- including the daughter.

The first time it aired, I got to wondering how the way this is dealt with reflects the difference between Britain's predominantly Social Model of Disability, and America's predominantly medical model.

So... you know, if you have 90 minutes or so to spare sometime this week, maybe you could check it out so I have someone to talk to about this?

(I'll be cross-posting this to

crip_crit)

Crossposts: http://capriuni.livejournal.com/609608.html

This is closed captioned in English; click the little cc thing:

(the captions say "he," but the sign is actually third person singular, no gender specified. So it's more a fault of English than a "mistake" by the vlogger. English should have a "gender irrelevant, here" pronoun, imnsho)

Crossposts: http://capriuni.livejournal.com/598127.html

So -- next Monday is Helen Keller's 121st birthday, and so, to celebrate, I want to put up some stuff in Zazzle store with a few juicy quotes from her on rights and activism, with cartoon illustrations. The one I've wanted to do for nearly a year now is this:

"... our old ideas are up a tree ... traditions are scurrying away before the advance of their everlasting enemy, the questioning mind..." The New York Call, October 17, 1913.

Folks who were with me for last year's National Art Making Month (August) might remember how I was puzzling out how to illustrate "old ideas" in a visual way, as they scamper up into the branches of a tree while hounds with question-mark spots are close at their heels. Some ideas I worked with was old men whose heads and faces were personified thought balloons, or personified books with tattered covers, and the words for outdated ideas ("bigotry", "NIMBY", etc.) on their covers.

And then, late last night, the idea came to me: skeletons -- maybe "monster" skeletons (human bodies with bird skulls, maybe) -- dressed in rags. Y/Y?

So I want to start practicing drawing that. But the light in my office has burned out, and it's cloudy, so I don't really have strong natural light, and I slept poorly, and I'm just teetering on the verge of a migraine, and ... and...

Even though I'm happy that I have a good idea, I'm cranky because I don't have the energy to play with it right now. And I want to play! Now! But it's not coming out well, and...

I'm cranky.

Oh, well, the UPS driver was just here... maybe he brought me my new book... I will go check. That might cheer me up.

[ETA: It was not my book, but my apron... which is, yes, long enough to cover my entire front in case there is a surprise!doorbell when I'm not wearing any pants. ... So that's good. Crossposting to LJ failed, last time. I shall try again]

Crossposts: http://capriuni.livejournal.com/596657.html

[AN: When I woke up, this morning, I thought this was going to be a long, involved, post with video links and full transcripts of words, audio, and description. But that was six hours ago, and it turns out I don't have the attention span for all that, anymore. So this is just to make note of these two sychronistic phenomena]

"American Country Music" fell out of my good graces after September 11, 2001, when the whole genre turned into "America's gonna whup the World's ASS!!," and the Dixie Chicks were ostracized for daring to criticize Bush's war policy. And I thought I would cringe at Country Music forever.

But then, yesterday, I read this post from Dave Hingsburger: The Day the Dog Didn't Die [emphesis mine]:

(quote) So here's to Darius Rucker, here's to song writers Brett James and Chris Young who worked with people with disabilities in writing the song, here's to CMA [Country Music Accademy] for making space for people with disabilities to shine. (unquote)

And then, a couple hours later, I was surfing through the channels on my set, and caught a glimpse of a country music video that featured two disabled war veterans just going through their daily lives (with actual disabled actors, no less, not able-bodied folks in Cripface), in a way that just happened to include putting on your prosthetic leg and glass eye (one soldier had lost a leg, the other had become visually impaired) when you get dressed in the morning, without pity.

The lyrics of the song, without the visuals, are all about getting over a bad romantic break-up; with the video, it's all about how being Disabled is just "A different kind of normal," instead of OMG!Inspiring!Tragedy! (though you wouldn't know it by reading the comments on YouTube).

( *The Shape I'm In* lyrics are behind this cut )

YouTube Video Link "The Shape I'm in" performed by Joe Nichols

You know, a generation ago, the Disability Rights movement got a big momentum push from the veterans returning from Vietnam, translating the skills they learned protesting the war policy into agitating for accessibility. Back when these wars started, especially since the lower mortality rates, this time around, translates to higher "survival with disability" rates, I was wondering if, or when, the Disability Rights movement would get another boost from vets.

Maybe that's starting to happen, now.

Crossposts: http://capriuni.livejournal.com/581485.html

Today,

trouble posted a link to this article: Service Dog etiquette for Dog Lovers, and it reminded me of this PSA from the Norwegian Association for the Blind (With English Subtitles):

( transcript (ish) behind here )

Crossposts: http://capriuni.livejournal.com/576403.html

Yesterday, was the UN International Day of Disabled Persons. I did not have spirit to post anything on it, but today, I came across this great essay in the LJ Comm "No_Pity" by dwgism (reproduced below the cut, because some people on my access list have computers that can't handle LJ's inflicted advertising):

( Vulnerable? )
I just realized, last night, that only one of my neighbors in my cul-de-sac has any Christmas lights up -- one bright green bunch of lights in one upstairs window. I honestly can't remember what last year's displays were like, but two years ago, every window and bush, it seemed was outlined and sparkly before the leftover Thanksgiving turkey was in the fridge.

When I made the realization, I got a little down.
- Of course, I haven't put up any lights since Christmas, '05; I was keeping them up until my dad came down for my birthday visit, so I could share them with him, and he could help take them down. Of course, he never came down for that visit again, because just before he was planning to, he fell, broke his leg, and discovered he had lung cancer.
  
  It's not that I miss the decorations. I miss having someone else to share them with. Putting them up for just me seems a bit pointless.
At the Art Garden after-gathering, Irene O'Garden asked me if I was still active in the neo-Pagan community, and that's when I tried to explain how I shifted from polythesism to agnosticism bordering on atheism. And she urged me to write it down-- really! I've written about various aspects of that process a few times, here in my journal. But I might try polishing up a single coherent version, here, over the winter.
A discussion of "How to approach Santa" in a friend's journal, yesterday, reminded me of a pet peeve my mother had about the Santa Culture: The "Be good, or Santa won't bring you anything!" threat.

I remember we were in a hospital waiting room (it was actually just a couple of benches in a wide, brick-walled hospital hallway-- kinda dark), and there was a mother and a kid of about seven across from us (I think I was about ten, iirc). And the kid was whining and crying and on the verge of a temper tantrum, and the mother said: "If you're not good, Santa won't bring you anything!"

And Mother said, aside to me: "Santa is the spirit of love, and generosity! Love doesn't stop just because you misbehave!"

My mom was the coolest.

(Plus, there's the implication that poor children are bad, or [as explicitely stated in the film version of The Polar Express] suffering from insufficient "Belief"). :::Shudder:::

I want to bring back the late 18th- early 19th Century tradition of bands of wild "Santas" harrassing the wealthy until they give money, toys, and treats to be handed out to the poorest kids in town: Comfort the Afflicted, and Afflict the Comfortable!
I've started over on my monster story. I drew a watercolor pencil portrait of my main character, and today, I'll do hand-written/drawn wordwebs for my characters. Doing Internet research, yesterday, I discovered, that nearly every part of the process, there are still individual people putting their hands and eyes on the plush toys. So now I'm wondering if I should alter my origin story which relied on computerized machines malfuntioning...

Crossposts: http://capriuni.livejournal.com/556019.html

The day I got back from Art Garden, my friends/reading list page was peppered with obituaries for Laura Hershey: former Poster Child for the Muscular Dystrophe Association who grew up to be an international disability rights activist and poet. Her most (deservedly)famous poem is

( You Get Proud by Practicing )

And I wanted to share it with all my friends, because: Yes! THIS! A thousand times, this! (and I wanted to shout it at my TV, last night, when I happened upon a scene of The Biggest Loser [Think "Survivor," but all about dieting and losing weight, where if you lose X pounds, each week, you deserve to be proud, but if you lose less than that, you deserve to be ashamed]).

Crossposts: http://capriuni.livejournal.com/555121.html

Okay: I've been tinkering with my sticker design idea, and I've got two versions -- horizontal and vertical:

( images, with description for the visually impaired, behind this cut )

CafePress will print these up as vinyl stickers with waterproof ink and sell them to me for $5 each if I order one, or $2.40 each if I order ten. The latter sounds like a better deal, but only if I can find 9 other people who'd like one. So: Would you like one? And if you would, would you prefer a horizontal one, or a vertical one? (Whichever gets the most votes is the one I'll upload to CafePress).

The vertical one has the advantage of being more unusual, and therefore eye-catching, but the horizontal one has the advantage of being a better fit on a car bumper (though that may not matter or count if you want to stick it on your wheelchair)

I'm still working on ( this design ).

I'm still fiddling with fonts and layouts and colors.

The 20th Anniversary of the Americans with Disabilities Act becoming law is July 26th, and the more I think about it, the more I want to celebrate/advertise it.

If I get CafePress* to send me a packet of ten of these, would you like me to send one along to you? If so, pm your mailing addy.

P.S. (forgot the footnote) *or suggest a good competitor...

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Ann

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Page Summary

What I did today (because I'm vain)
Here's a "video" of a song I wrote back in August, '08-- and rewrote (2/3 of) last weekend
Playing around with an idea for a Video. Feedback, Please?
My own version of the "Bipedal Privilege Backpack"
I have Questions about the Future of "Plato's Nightmare / Aesop's Dream"
Link-Signal-Boost, & "Yes, This":
Okay. This is starting to become a head-desk activity.
Halloween-themed Signal Boost and PSA:
I haven't been posting about my August Art here, this month, but for this piece, I kind of have to:
Recent Zazzle Designs (and the anger that's inspiring them):
Finally! Can we now, *please,* change our language to match the truth?!!!
Before I forget: Tonight, on "Mystery!" (PBS American Teev)
Check it! Someone made a vlog about a comment I posted to *his* vlog:
I'm cranky.
"American Country Music" started the long, slow, climb back into my good graces, yesterday.
It's not often that a PSA makes you laugh out loud every time you see it. This one does it for me.
*Sings* Five (random) things!
I hate getting to know fabulous people through reading their OBITUARIES
Sticker design, Beta:
If I buy a packet of ten of these, from CafePress, as *real* stickers...

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Notes, Notings, and Common Refrains

The songs that are stuck in my head

Entries tagged with disability rights

What I did today (because I'm vain)

Here's a "video" of a song I wrote back in August, '08-- and rewrote (2/3 of) last weekend

Playing around with an idea for a Video. Feedback, Please?

My own version of the "Bipedal Privilege Backpack"

I have Questions about the Future of "Plato's Nightmare / Aesop's Dream"

Link-Signal-Boost, & "Yes, This":

Okay. This is starting to become a head-desk activity.

Halloween-themed Signal Boost and PSA:

I haven't been posting about my August Art here, this month, but for this piece, I kind of have to:

Recent Zazzle Designs (and the anger that's inspiring them):

Finally! Can we now, please, change our language to match the truth?!!!

Before I forget: Tonight, on "Mystery!" (PBS American Teev)

Check it! Someone made a vlog about a comment I posted to his vlog:

I'm cranky.

"American Country Music" started the long, slow, climb back into my good graces, yesterday.

It's not often that a PSA makes you laugh out loud every time you see it. This one does it for me.

Sings Five (random) things!

I hate getting to know fabulous people through reading their OBITUARIES

Sticker design, Beta:

If I buy a packet of ten of these, from CafePress, as real stickers...