capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2013-05-22 20:56

*fingers crossed* that this is actually going to be good...

So -- the big television news for the coming season, here in the States, is that Michael J. Fox is coming back to television in a sitcom which is also writing for (I think), as a fictionalized account of his life since leaving television due to having Parkinson's.

On the one hand: yay! Disability as portrayed by someone who lives it, rather than fantasizes about it. On the other hand, I've been apprehensive, because the network it's airing on (NBC) has done some terrible shows, like The Apprentice and Biggest Loser.

But I saw the official trailer for the show last night, and I'm now more hopeful. For one thing, it looks like at least some of the jokes will be about "TABs say the darnedest things, don't they?" It also looks like it's both set, and filmed in NYC (Hollywood versions of New York are faker than Dick van Dyke's cockney accent).

Here's the trailer from YouTube:
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2013-04-25 17:51

An "Anthology Post": things I've, listened to, read, and watched, this past week that moved me

Listened to:
From WNYC's "RadioLab" -- A a segment from a show from December last. The first five and a half minutes or so of this 33 minute segment is about the joy of a man at the end of a three-month solo trek across Antarctica. And then, from then on, it's the story of a Holocaust survivor who tried to invent a new communication system that he hoped would end all war... That, it itself, would have been fascinating. I was not expecting it to end up revolving around children with cerebral palsy living in an institutional home/school/hospital in the 1970's in Ontario, Canada... but it did (Content note-- it ends on a fairly tragic, ironic note):

Mr. Bliss

For something completely different, also from "RadioLab": Liev Schreiber reads Italo Calvino's The Distance of the Moon; written in Italian in 1965, and translated into English in 1968... i.e., before we landed there...
(Content note-- one of the main characters is written as Deaf for metaphorical/symbolic reasons as a sort of Magic!wild-man/Innocent-Primitive)

Read:
Found by way of "Rolling around in my head": Reclaiming memory: Searching for Great-Aunt Sarah (Content note: institutional life and death in the early 20th century)

From "Rolling around in my head" Directly: The Better Way (content note: neither tragic nor ironic-- includes a crying baby)

Watched:
And a child shall lead them -- going-on-eleven year-old Stephanie leads a blue-grass band of adult white men... You can tell she's the leader in this particular set, because she sets the tempo for their playing, and signals the final chorus of the first song with a straight-leg kick (a standard signal in folk music):


(Content note-- precocious kid on stage and occasional out-of-focus camera).

This moved me not so much for the cuteness factor, but the aplomb and grace of one so young in front of an audience -- maybe that's her "un-cuteness"?
capriuni: half furry, half sea monster in wheelchair caption: Monster on Wheels (Monster)
2013-04-14 13:28

Food for thought:

Over at Rolling Around in my Head, Dave Hingsburger is asking a question that tickles that special lexicography geek place in my heart (It's another "What's a lexical gap in English that you would like to see filled?" discussion). And since I have people in my circles that identify with various forms of queer- and/or Disability Pride, I thought I'd share it here:

Begin Quote:
Several years ago George Hislop, who was a close friend, told me the difference between someone who was 'gay' and someone who was 'homosexual.' He said that a 'homosexual' was someone who had sex with others of the same gender but who did not identify with their sexuality, denied it as often and as loudly as they could and who did nothing to support the political movement regarding the rights for sexual minorities. A gay person, on the other hand, was someone who also had sex with others of the same gender but had an affiliation to the movement to the rights of others to love as they will that went beyond sex. Gay people, he said, identified with their sexuality and with their community. He saw the difference as the same as the difference between shade and sun.


[Snip]

Begin Quote:
Like the woman I spoke to in Maryland who wanted to talk to me about accessibility in Toronto. When this happened it reminded me of being in a gay bar in Milwaukee and being asked how safe it was to be gay in Toronto. In both cases, it was more than strangers asking strangers tourist advice ... both were experiences of the best of community. Where strangers aren't so strange, and where questions are understood at the deepest level of their asking. Community is community but community requires an entrance fee - identity.


So... while I'll be working on other things, today, this question will be running in the background of my thoughts... I'll probably have more to say about it later.

[ETA: Oops! forgot the link to the full post -- here: http://davehingsburger.blogspot.com/2013/04/take-notes-theres-quiz-at-end.html ]
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2013-01-23 14:19

Second Annual "International Day of Mourning and Memory"

I meant to signal boost this. I failed. The Calender caught up with me. I intended to write something. I may, still. But at the moment, I am feeling speechless.

So I urge you to read this blog post from Dave Hingsburger instead:

http://davehingsburger.blogspot.com/2013/01/1440-international-day-of-mourning-and.html

A quote:

In a graveyard, not far from where I type, 2011 people were laid to rest. Only 571 have names. A full one thousand four hundred and forty lay nameless and forgotten. Even if you knew them once, you'd never find them now.

How could this be?

The is a graveyard that lay on the lee side of institutional walls. That institution is now closed. No footsteps echo down the long corridors, the smells of human captivity are slowly fading, the tools of segregation are growing rusty in the dark corners of back wards. Many people who lived there are now free. Many are now finding their way as full citizens, part of the community that once rejected them. Many will never know a moments surety that citizenship is an irrevocable thing.

Murderers serve less time than people who committed the crime of difference.
(end quote)
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-12-30 23:29

Movie rec: Pixar's "Brave"

The other day, [personal profile] dharma_slut posted this link to a TEDx Talk by Colin Stokes, about the correlation between our modern rape culture and the lack of movies that pass the Bechdel Test:

http://youtu.be/Nx8RRIiP53Q

Quick summary of his thesis:

A) It's not enough that we empower girls to protect themselves against the Patriarchy; we have to teach boys to fight the Patriarchy, too.

B) Adventure movies aimed at young male audiences that Don't pass the Bechdel Test have the following subtext: "The role of the True Man is to go out Alone and Kill the Bad Guys, and then come home and collect his reward: a woman who has no friends, and doesn't speak."

So:

C) It's time for fathers to teach their sons that it's a good thing to want to be on Team with the goal of helping others, instead of being a Solo Renegade, even if the leader of that team is a woman, and that Real Men trust their sisters.

And part of his talk was a strong endorsement, by name, of Pixar's new Movie "Brave."

Based on that recommendation, I did something I'd never planned on doing: Gave Google my credit card number, and rented "Brave" for 48 hours of watching over the Internet. I just finished watching the first time through tonight... May watch it again before time's up tomorrow.

Anyway: I wanted to report: not only does it pass the Bechdel Test (the whole movie is basically a long conversation between Mother and Daughter about How to Lead your King Queendom), it also passes the Disability Test I came up with a couple of weeks ago.

The King loses half his leg in the first act (before the tenth minute), in a fight with a demon bear. And for the rest of the film, his peg leg is treated as proof that he Survived, rather than a reason to be pitied.

So it has a disabled character. And while he boasts about getting revenge against the demon, that's clearly for the sake of a good story; he spends all his actual energy trying to maintain the peace in his kingdom (mainly between his wife and teenage daughter), so it's clear that that's his real motivation. And the movie has a happy ending, even though (*gasp*) he still has a peg leg at the end.

Anyway, the movie's page on YouTube has snippets of reviews from Rotten Tomatoes, and while the majority were positive (overall 78% positive), even the good reviews were kind of lukewarm. Now that I've seen the movie, I think a big reason for that is what I call: "Mashed potatoes Vs. Vanilla ice cream Syndrome;" they may be the best mashed potatoes ever to come out of any chef's kitchen, but if you gobble down a mouthful expecting ice cream, you're going to hate them.

The number one thing that I noticed about this film, in comparison with all the other Pixar movies I've seen is that it is so much darker.

First, it's literally darker. Every other movie from them has been "candy-colored:" the worlds of children's toys, and tropical fish in coral reefs, and crayon-colored monsters in closets. This movie was set in the Scottish Highlands, in the Middle Ages, and its color palette is dominated by fog, and stone, and deep, dark forests (still image from the film of the heroine riding her black horse through a fog-shrouded ring of standing stones). I, on the other hand, love those forest/earth tones. But I still recommend watching the 2-D version, and turning the brightness on your screen all the way up.

Second, it's thematically darker (and that may be what dampened reviewers' enthusiasm most of all). Usually, these kinds of "kids' movies" get their happy ending from the moral: "Free spirits just have to be Free!!. But this movie gets its happy ending from the moral: "Free Spirits must learn to temper their Hearts' Desires with Responsibility Toward Their Community." The soaring ballad during the closing credits is "Learn me Right," and it's all about owning up to your mistakes: needing, seeking, and earning, forgiveness.

According to Box Office Stats (unfortunately powerful), this was the first Pixar movie to fail to come in the Top Ten of the Year (it came in #11). I can't help but wonder if it would have done better as an autumn movie-- it certainly had an autumn feel, rather than summer vacation and cotton candy... you know?

Anyway, I liked it.
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-12-03 17:57

Update on my thoughts about "The Disability Test"--

So, last night, between a long, hot, shower and getting ready for bed, the question of this whole test clarified (as happens), and this is the revised version that's circling in my head, now, after sleeping on it.

[personal profile] jesse_the_k. [livejournal.com profile] lilacsigil, [livejournal.com profile] kittenmommy, [livejournal.com profile] elettaria, and [livejournal.com profile] prydera all disagreed with my inclusion of the criteria that the disability be "Actual" and "have consequences," since that would likely lead to "disability policing." And I see that point -- I also realized that, since "A Quest for Cure" is irrelevant in this test, "Cause" is also irrelevant. So that part is simply out.*

I realized that what makes the Bechdel Test so strong is that it is completely free of jargon -- using words that even those who never studied literature or writing get intuitively:

Stories have people who talk to each other about... stuff. The Bechdel Test point out: Unless those people are women.

I (and many folks in my circle) are comfortable with terms like "Conflict resolution," "story arc," and "motivation," but these terms are still jargon to many (and they have lots of syllables). [livejournal.com profile] elletaria also pointed out that it would be nice just to have random people with disabilities Show up in the background scenes whether or not they're actually part of the story. It's so rare that they're even in the background.

So-- this is the hot-water-drenched version:

1) There's a disabled person visible
2) Who wants something, and tries to get it,
3) Other than: Death, Cure, or Revenge.

(This might be the main character having story-type adventure, or it could just be someone in a wheelchair, in the crowd, buying a paper at the newsstand, while the lead couple make googly eyes at each other in the foreground)


*(Incidentally, I included "consequences" mostly as a note to myself. I originally wrote my NaNoWriMo novel as a script for ScriptFrenzy!, five and a half years ago, and back then, I only had my prince character suffer a missing eye and facial burns to break from the trope that the heroic prince is now and must always be "A Handsome Prince."

But, in revisiting the story this time around, I realized: "Oh, hey! having only one eye is going to change how he moves through his palace, isn't it -- especially all those steep, uneven, lit-by-torchlight, tower staircases? That's probably something I should address, and not have him capering up and down like he used to, when he was twelve..." [He's also relatively newly disabled -- within the last year -- and he hasn't, yet, gotten completely comfortable with his changed body])
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-12-03 13:30

Signal boosting: Today is International Day of Persons with Disabilities

A link to Dave Hingsburger's post in honor of today: International Day of Persons with Disabilities: Three Stairs

(Begin Quote)
Later, much later. I stepped into a 'special school' for kids with physical disabilities. There was noise, noise, noise, kids laughing, kids fighting, kids racing pell mell down hallways. The noise was so distracting that it was hard to notice as you walked through the school, even from the old part into the new part that there weren't three steps. The school was accessible to itself, but closed off from the world up three steps.

No one ever asked me to consider.

Where they were.

Why they weren't there.

Who decided that they could be disposed of in other towns, other places.
(End Quote)

Here's the reply I left on that post:

Thank you, Dave. I will post this on my personal journals to signal-boost within my circle.

But I find myself asking:

"Why didn't I know this date was coming up (or that it even existed)?"

If I had, I would have planned, in advance, for ways to spread the word, and celebrate.

But I guess, in many ways, we are still not considered.
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-12-02 18:09

A disability version of the "Bechdel Test," maybe?

(I've also posted this to [community profile] disability, where it is waiting in the moderation cue, and I mentioned this at the end of my most recent post about my NaNoWriMo novel [under a custom filter], but I also thought it might be good to open this question up to everybody, so... here it is [ETA: Also, I realized, just now, that I can cross-post it to [livejournal.com profile] crip_crit, so I will do that]):

So, you know about The Bechdel Test, for evaluating certain aspects of gender bias and sexism in fiction, yes?

Well, there has been some talk in some circles, about how one could come up with something similar for depictions of PWD in fiction -- the discussions that spring immediately to mind are these two from Dave Hingsburger's Blog: "Rolling Around in My Head," from March of this year:

The Dave Test and The Rolling Test (I think he updated the name in order to honor all the comments to the Rolling... blog, not necessarily the little wheelchair stick figure).

Anyway, November is freshly over, and I'm still recovering from this year's NaNoWriMo marathon, and my head is still buzzing with my story. Cut for rambling about my story ) I realized I've created some disabled characters that do not embarrass me, and that feel as though they do reflect something of what I experience as a disabled person (even though I did not give either of these characters my form of disability). And, in the process, I think I've hit on my own "Disability Test" for fiction (movies, TV, books, etc.):

1) There is at least one character who has an actual disability (with consequences)
2) The character is in the story to resolve a conflict of his or her own
3) Curing the disability will not resolve that conflict.

notes with more rambling )

The thing is, the strength of the Bechdell test is in its simplicity: 3 points, 15 words. So-- any tips or feedback on how I can simplify this test? And, perhaps more important, do you think this test "covers" the biggest weaknesses in fictional depictions of disability?
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-08-12 15:12

today's na'art

Another cross-post from [livejournal.com profile] naarmamo:

---

Two, today, to start catching up on my missed days -- both done free-hand in ballpoint, because I couldn't quickly find a pencil that wasn't a stub.
And today's theme is "Disability Pride."

Ever since Na'Ar'Ma'Mo '10, I've adopted monsters as my personal metaphor for disability -- as I explain in this post from February of last year: On Monsters: Stigma, Shame, and the Medical Model of Disability. But the problem with making any and all monsters a symbol of disability, is that it still reduces "Disability" to a symbolic lesson for the "normals" (Irony quotes).

And then I remembered an aphorism in Disability Culture: "If you're lucky to live long enough, sooner or later, you will be disabled." And, remembering all those stories where dragons defeat hundreds of knights before finally being defeated, themselves (only the dragons that get killed make it into the human stories), it occurred to me that it would be very unlikely that they live their entire lives unscathed. So I give you "Survivor" -- the one-eyed, amputee, dragon:

survivor
(not exactly happy with the empty eye socket)

---
ETA: Oooh! Just had an idea: When a Fire-breathing dragon "licks its wounds," would that instantly sterilize and cauterize said wounds -- thus making it less likely to die from infection and blood loss? Thus, making it more likely that a dragon could survive in a prolonged, disabled, state, than, say, a wounded stag (or even human)?
---

This second one is a sketch for how I wish pitchers and jugs where designed, to make them easier to pour out of with greater control, and less strain on the wrist and forearm:

pitcher idea
(I drew the side view twice, because I wasn't happy with my first attempt at the handle -- the dots are where the ink bled through from yesterday's heart)
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-05-25 00:12

The Monster Poem Cycle: #4: "Identity"

One thing I learned in high school math (besides the fact that I prefer learning math outside of school), was that it takes plotting three points before you can be certain of your line. It wasn't until I finished up the third poem that I recognized the connections I'd already made between them, in the form of recurring motifs. This one starts off at the point almost at the end of the last one, right before the closing couplet ("So our identities, are fragile, caught/Between what's in our dreams and what's been filed."); I wanted to be clear that I meant the complex, shadowy dreams of our subconscious, and not the saccharine substitute for "fondest wish," So that's where I began.

THE MONSTER'S CHALLENGE OF IDENTITY

Just as a rowboat scrapes the pebbled beach
I drift back from my sleep to feel the bed.
Receding like the tide, just out of reach,
A dream slips, half-remembered, from my head.
The nightly riddle posed, always the same:
It asks me who I am, beyond my name.

The question's asked again out in the crowd
Reflected in a stranger's troubled glance,
As though I were an insult spat out loud:
A portent for the fickle whims of Chance.
Philosophers in centuries long past
Wrote cunningly and well of God's good plan:
Which creatures were the first, and which the last,
The proper rank and order meant for Man.
And creatures (like myself) who can't belong?
{We were the curly brackets of their set}
To demonstrate, by living, Right from Wrong,
So all remember God, and not forget:
A belief that's set in stone, or so it seems...
Although it cracks, a little, in my dreams.


[Edit: I bet the middle quatrain of the main part seems like a non sequitor to anyone outside my brain, huh? Let me try a fix -- How about:

Philosophers of centuries long past
Wrote cunning answers all about God's plan:
Which creatures were the First, and which the Last,
The proper rank and order meant for Man.

Better?]
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-05-12 21:02

The Monster Poem Cycle: #3 of 4 (at least -- more likely 5)

Has it really been over a month since I last posted for this mini, two person, meme? Eeep! I've not given up on it. Really, here's proof:

Monster Poem #1 (revised from its first posting here, on March 31st) )

Monster Poem #2 (Slightly revised from when it was first posted here April 4th) )

And finally (for now), poem #3 (\o/):

THE MONSTERS' ANXIETY

"The Campus Registry for 'Special Needs'"
(Protected from the mainstream's quickened pace):
We're gathered here like flotsom in the weeds
United, simply, by coming to this place.
As different from each other as from those
Who tell us where to sign, and where to go.

Some Deaf, some blind, "mobility impaired" --
No two needs the same for getting by.
We know the pain, and try hard not to stare
But in the face of Difference, we are shy.
We know that we are lucky to be here,
And neither locked away, nor even dead.
And yet, in spite of Love, we still have Fear:
The knowledge: "I'm a monster" in our heads.
For we, as well, have learned what elders taught
About what makes a Man, and makes a Beast,
And our identities, in Limbo caught --
Put us on shaky ground, to say the least.
But we are here, and will be here again --
Perhaps becoming allies -- even friends.

-------------
(I'd decidedly "Meh..." about the closing couplet -- it's bordering on the too-cozy-sentimental. But I can't think of any better conclusion at the moment)

For now: Dinner Time!
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-03-16 18:55

Contemplating a post for "The Ugly Duckling" (H,C. Andersen) for my folklore blog... But.

Two Arguments For an Ugly Duckling Post:

Argument One: The protagonist "duckling" of the story is an outsider within his own family, and fails to embody their concept of "normal," because it is physically impossible for him to do so. He is therefore ostracized and bullied. This echoes the lived experience of many children with physical disabilities.

Argument Two: In (perhaps) the most famous modern retelling (The Danny Kaye musical bio-pic of Andersen), The Ugly Duckling is used, specifically, as a metaphor for illness, and how physical difference is a magnet for acts of public bullying. ... and this modern understanding of the story underscores how our society puts the responsibility for bullying on the shoulders of the victims, and makes "Cure" the most legitimate response.

---
One Big Argument Against an Ugly Duckling Post:

Argument One and Only: There's Zero Evidence in text that Andersen, himself, intended the "Duckling's" experience to be a metaphor for illness or disability. ...

And because of that, I'm not sure whether the story would count as being within the purview of my blog. Sure, the original source was penned well before the onset of the Great War, but that specific retelling (YouTube clip from the film) came a solid two generations afterward. And that raises the philosophical question of whether or not the telling and the retelling are, in fact, the same story.

Now, if I could find some evidence that that movie interpretation had some basis in fact -- that that is what Andersen intended, than I'd have no compunction whatsoever about including it (and it would make March the month for our Web-footed Friends, over there).
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-03-11 13:16

I love this Doritos(R) advert!



Transcript )

I love this ad because A) the Grandmother is shown as cool and strong, regardless of the wheelchair, and B) the wheelchair is shown for what it actually is: an effective tool for getting access to what you want.

Unfortunately, it did not get enough fan votes to actually get aired during the Superbowl -- the one that did win centered around mocking the concept of identity disorder, and laughing when the person got hurt. But considering the self-selecting group of people who did the voting, maybe that's not surprising.

Still, this one is being shown now, and it's out there in the cultural cloud.

---
Also, in playing and pausing this ad for the transcript write-up, I noticed a continuity error: in the opening shot, the Grandmother has one of those folding portable tea-trays with a tea-cup and doily on it, that's missing for the rest of the spot. I suppose it was there in the first place to push all the "hopeless old lady" buttons in people's minds, even though they had to get rid of it for all the action shots to follow.

hmf.
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2012-02-06 11:04

Reminder to Self: Stories (or literary snippets) eligible for "Plato's Nightmare" posts

From the Grimm Anthology of Household Tales:

Rapunzel (for the young king's period of blindness)

The story of the young boy who went forth to learn about fear (Popular [mis]understandings of Asperger Syndrome)

Cinderella (for the blinding of the two stepsisters going to and coming from the wedding [and also, possibly, the mutilation of their feet]?)

The Seven Ravens, and The Six Swans, and The Twelve Brothers (for muteness, as in Mary's Child [posted on December 15, 2011])

Goose-Girl at the Well (For the fear of disability that comes with age / the "use" of disability to test the hero)

The Gifts of the Little People (for Hunchbacks)

The Two Travelers (sacrificing eyes in trade for food, as in the Welsh tale The Squirrel and the Fox [posted July 15])

Thumbling as Journeyman (A different version of Thumbthick [posted April 24])

*sigh* making links is taking too long; will just post titles from here on out
---
From Hans Christian Andersen:

The Little Mermaid (muteness and painful walking)

The Ugly Duckling (?) [Not sure about this one, actually. Disability isn't actually mentioned in the story itself, but it's now associated with disability / illness because in the Danny Kaye musical biopic of Andersen, he tells it (sings it) to a sick boy to cheer him up when the healthy schoolboys tease him -- and it does highlight the issue, in any case, of being the "odd one out" in your own family]

The Cripple (a peasant boy becomes suddenly paralyzed [reference to polio before it was named as such?] and after receiving a book of fairy tales as a charitable gift one Christmas, spends his time reading it, and earns a scholarship at a prestigious university after showing his genius interpreting the stories for others. Really!!]

(can I just say I have a troubled fan-relationship with Andersen? I'm totally with him on the power of storytelling in general, and wonder tales in particular, but his ableism and misogyny (not to mention his Protestant obsession with sin and evil spirits) make me want to pull my hair out, sometimes. I'd love to borrow a TARDIS to go back and have a good sit-down debate with him about this. Perhaps over tea.)

Various and Sundry (literature):

Robert Browning's verse telling of The Pied Piper of Hamlin (for the lame boy who stays behind)

Clara, in Heidi

Colin, in The Secret Garden

Shakespeare's Richard III (and Sigmund Freud's literary/psychological critique of same)

Caliban, in The Tempest (yes, one popular interpretation of his character is that he represents P.O.C.. But he's also described in-text as a "moon-calf" -- i.e. someone born with deformities, and, like Hephaestos in one myth, attempts to rape the woman of his desire)

The Hunchback of Notre Dame

Dead-Eye Dick in H.M.S. Pinafore (Ambiguous, though; it's not entirely clear whether he's blind in one eye, as his name suggests, or if he's just ugly, and therefore despised by his shipmates)

---
To be continued....
capriuni: half furry, half sea monster in wheelchair caption: Monster on Wheels (Monster)
2012-01-22 13:11

Behind the Ball in Signal Boosting

It's been in the back of my head to signal boost and promote this idea for the last couple of weeks, but, well... I kept putting it off, in part because I wasn't sure what I wanted to say about it, if anything. And now the date is tomorrow, and there's no more room for putting it off.

Dave Hingsburger (and many of his blog readers, Yours Truly included) want to have an "International Day of Mourning and Memory" for those people who have been sent away to live Institutional Lives because their minds and/or their bodies are different. And when they die in these places, they have no family to mourn or remember them* ...

Dave Hingsburger explains his reason for the date in this post: http://davehingsburger.blogspot.com/2012/01/january-23-international-day-of.html and his reasoning is pretty compelling, imnsho.

He has also posted links to a video & song that tells the true story of one such person who was sent away to live in one of the more "progressive" institutions, back in the 1930s. Here: She Never Knew (She Never Knew) [trigger warning for hate speech graffiti]. This song was running through my head yesterday, as I was writing up my post on "The Steadfast Tin Soldier", and I have THOUGHTS about it. But I think there are enough of those to make their own post. So maybe I'll post about it on Tuesday (Tomorrow, I'll post about remembering those who've been locked away, as my means of observing the day).


*In doing Google searchers for images for my Monsters In Town! song, I learned that institutional "homes" in Minnesota wouldn't even put family names on the grave markers on their grounds, because being connected by name to someone so defective would be too shameful for the survivors... So the grave markers would only have the patient's case file number.
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2011-11-13 22:22

On "Crutches", and on "on Crutches":

As an incentive -slash- reward to keep writing, today, I told myself that I wouldn't blather nonsense in my journal until I had caught up, and was on par, with NaNoWriMo.

Ta-DAH!!
Check out the "At this rate, you will finish on:" line.
When I started, I believe that read Feb. 3, 2012


*Preens*

*Ahem* Onto the nonsense:

So, anyway. Inspired by the one-armed ghost in the story I posted for Halloween (and at the last minute-- like Yesterday), I decided to make one of my major-minor characters a crutch-using ghost.

And that sent me looking for crutch pictures on Google, so I could get a sense of the change in Crutch design through the years, for when I settled on a period for my ghost's deathday, and the kind of crutch he would still have ('cause a ghost's form, in my universe, is determined by their bodily self-image in life).

What mostly boggled my mind was the official, medical advice illustrations on the "proper use of crutches." Firstly, what was most annoying (for my purposes) was that they were nearly all the underarm type crutches, and all the sites assumed you were just dealing with a broken leg or sprained ankle, and not something like M.S. or C.P., or other conditions that make your balance go wonky. Secondly, I was bamboozled by the number of posed photographs and diagrammed illustrations that showed the crutch-user standing perfectly upright, with the crutch tips right up next to their ankles (if the person were wearing pants with piping down the side, the crutch would hide it completely). I mean, isn't the whole point of using crutches to broaden your base, to make you more stable? Growing up, all my life, I have never seen anyone use crutches in that way-- we all walked like the quadrupeds we were (I used crutches most of the time, until I went away to college, and decided to save my spoons for studying, and participating in class).

Also, seeing all the pictures of actual crutch users (not interns posing for a Web page) reminded me of how often my therapists would nag me about my crutch-walking posture. They all wanted me to hold my crutches so the thumb-side of my hands were facing forward, and my palms were facing inward. But that always felt uber-awkward to me, and like I couldn't possibly keep firm traction between crutch and ground that way. I prefer/red to hold my crutches with my thumbs facing inward, and my knuckles (fingers, if I stretched them out) facing forward.

Then, I realized something: For me, Crutches are not an aid for walking more normally, 'cause "walking" was never actually a schema that's natural to my brain. Nope. According to my brain, crutches are just an aid for making crawling taller. When was the last time you saw any baby crawling with her fingers pointed out to the side?

For those folks who walked before they got crutches, I bet it's a lot easier and a matter of course to point the hand grip forward, but that's just a guess.

I also learned in my Web surfing last night that my preferred form of crutch is called the Kenny Crutch (After the Australian nurse who designed them for polio patients) -- they have two upright supports that taper to the tip kind of like a Y, with the arm cuff and hand grip attached at two points, instead of one. Here's the only place online I found that has that style for sale:
http://www.fetterman-crutches.com/crutches/ed-openshaw-kenny-armband/index.php

Mine were also custom made, but they were made by guys in the rehab hospital's workshop, out of pressure treated plywood and PVC pipe (for the cuffs), not rosewood and high-grade leather. ...I should probably get back into condition to use them more. Not just for health, but for having extremely effective clue-by-fours when I go out into the world...
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2011-11-04 16:07

A music video that I found cheering:

lyrics (and brief video description )



On YouTube, this video has a link to "Oh No they Didn't!" -- LiveJournal's premier "let's make fun of people" community, which makes me sad. But I do like the video, anyway...
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2011-10-10 19:24

My latest *Plato's Nightmare" post is now up:

"They that went on Crutches" (the intersection of Disability and Old Age) (basically, I just expanded yesterday's DreamWidth post where I asked: "Should I include Old Age in discussions of Disability?" 'cause by the time I finished writing that, I realized I should, and, what's more, I could use that passage from The Winter's Tale as my example -- it is, after all, a classic literature text written in the form of a fairy tale. So it fits my blog in all 12 dimensions of known space.

Oh, and according to my Blogger dashboard, Plato's Nightmare / Aesop's Dream passed the 1,500 unique page-view mark sometime yesterday (not including my own checks, to see if anyone has replied).
capriuni: Text: "I know where my towel is, But I can't find anything else." (Samhain)
2011-10-07 14:16

Now I remember why I was talking to myself about Halloween costumes!

(And now I'll share what I said to myself)

The first-cuppa-coffee chat started rolling, because just the evening before, [personal profile] spiralsheep sent me this link to a BBC story about a pterosaur fossil fragment that turns out to be from the largest toothed pterosaur ever (yet discovered): http://www.bbc.co.uk/nature/15150591

And that reminded me of a podcast I listened to this past summer about pterosaurs and their mobility in the air and on the ground (here: To Err is Human. To Rawr is Dinosaur) where the visiting experts point out that the only way a human could get even close to walking like a pterosaur is to use crutches.

And as I was toodling around the next morning, I glimpsed my crutches propped up in the corner, and was instantly tickled by the thought that, within my circle of friends, I alone could pull off the most accurate pterosaur costume, and make it look the least cheesy.

And that triggered the perennial self-debate about why should crutches or wheelchair be even a consideration in deciding on a costume? Why can't you just dress up as a character that happens to use a wheelchair or crutches?

And this is the answer I told myself:

It's not so much an issue with crutches. But a wheelchair user is surrounded on three sides by a cookie-cutter machine (especially if it's motorized). So the only clear view anyone would have of your costume is face-to-face. And how often does that view come up when you're at a party (or convention, or out trick-or-treating)?

If you're going to put an effort into making a costume in the first place, you want to be noticed and appreciated from all sides. And that means covering your chair. Not out of shame, but using what you've got: a rigid scaffolding with a motor and wheels -- in short: turning yourself into a one-person parade float. :-D

Here are some ideas I've come up with in the past, but have never gotten around to doing: )
capriuni: Text: "I know where my towel is, But I can't find anything else." (Default)
2011-08-11 17:04

Disability Pride Flag? (with questions)

(cross-posted from [community profile] disability)

Back on July 31, Dave Hingsburger, author of "Rolling around in my Head," blogged about the International Maritime Signal Flag "Foxtrot" (a red 'diamond' on a white square field), and its meaning: "I'm Disabled; Communicate with me." And announced that he would be using that as his "Disability Pride Flag" to wave at parades, and hang out his window.

Here's a link: Wave Your Flag

I have mixed feelings -- five of them, as a matter of fact:

1. I like the idea of a disability pride flag.

2. I like the idea of a disability pride flag that is an abstract symbol (rather than something like the wheelchair access icon -- which privileges visible, mobility-based disabilities over others)

3. I don't like the idea of appropriating an existing flag, which already has its own set of meanings (which vary by context, and is complicated by the fact that NATO has decided that, for them, each flag means something different). If I'm going to wave a flag to show my pride in my community, I want it to be unique.

4. Besides, the flag's original meaning for "Disabled" is "I'm stuck. I need help!"

5. I see this as a challenge to come up with my own flag design. (*grin*) Hence, the questions.

---
A) Should I start with the maritime signal flag idea, and modify it (I've already come up with two designs by combining two different flags, but I'm not sure I'm happy with them), or should I start from scratch?

B) Each element on a flag usually represents a key idea or belief. My ideas for a Disability Pride flag are: eccentricity (in the literal sense -- we're "off-center" in our wider communities, and need to find our own way through), self-advocacy, adaptability, and community. What are yours?

C) Now, this is pure fun -- what are your favorite flag colors?